Monday, March 11, 2013
Friday, March 1, 2013
What a Year Can Make!
2012 - I was doing so good posting in Abbie's Blog. Got involved in what other states were doing about the Autism Insurance Laws. Updating Abbie's progress. Then Life Happened.
So here is what happened in 2012. A brief overview and I will add things I remember later. We will Start with the Big Stuff and move to the smaller stuff of accomplishments.
Daddy and Abbie had a Birthday in January of 2012. Daddy turned 44 and Abbie turned 3 years old. Such a Big Big Girl. Abbie started preschool at the county schools. So she started having big days, going to therapy in the morning and preschool in the afternoon. (no more nap time) :). Mommy started back to work to help pay for all the medical expenses that go with Autism. That is a later discussion.
April 3 Mommy had her birthday, April 4th - NaNa (Daddy's Mommy) passed away caused by Cancer. Very, Very sad and Hard Days on Daddy and Abbie's Uncles and Aunts.
Abbie started to make progress, she started making more eye contact being more aware of who is in the room, and we started Feeding therapy at Brown. Finally after waiting 9 months we got a slot for Feeding Therapy Session at Vanderbilt. Abbie started making progress with Feeding (one of hardest battles even today).
June, Abbie had a new Nanny Lindsey. Abbie and Us love Lindsey. They do all kinds of stuff, play, go out, go to park and Adventurer Science Center (Abbie loves the science center), Do Brown Home work (YAY). Many Many Activities. Abbie misses her other Nannie Diane but she finished her schooling for her Masters in OT. So she had to do her clinical rotations! But we are so very blessed to have found Lindsey (thanks to Sabrina for her recommendations)
We went on Vacation in September to our Favorite place Virgina Beach - Abbie loved the water again and even the Sand. We spent time with our friends Michelle & Savannah. Abbie started to play a little bit with Savannah and even held her hand while taking our summer pictures together. This was the start of major eye contact, and really being aware of the people around her. It is so amazing to see her come out of her little shell.
October - Daddy got sick! He had a bleed in his lungs. You see Daddy has Cystic Fibrosis, and sometimes very bad infections can cause bleeds in his Lungs. Daddy went into the hospital. Very scary for Mommy and Abbie. The first time Daddy had been away for such a long time. Daddy was in the hospital for nearly 6 weeks. Daddy and Mommy was told by Daddy's Doctors that he needed a new pair Lungs and that if he didn't get new lungs he would have maybe 6-12 months to live. Very hard news for Daddy and Mommy to hear. So Daddy's Doctors started the Lung Transplant Evaluation. Lots and Lots of tests. Daddy missed Thanksgiving so we had Thanksgiving with him. Then Daddy came home and got sick again, and went back into the hospital for another 3 weeks. Daddy missed Christmas at home so we went to Daddy. Mommy didn't want to put up Christmas decorations this year but mommy friends from work came over and helped! So Abbie loved messing with the Christmas Tree, but she had fun opening her presents. There is the overview of 2012!
So here is what happened in 2012. A brief overview and I will add things I remember later. We will Start with the Big Stuff and move to the smaller stuff of accomplishments.
Daddy and Abbie had a Birthday in January of 2012. Daddy turned 44 and Abbie turned 3 years old. Such a Big Big Girl. Abbie started preschool at the county schools. So she started having big days, going to therapy in the morning and preschool in the afternoon. (no more nap time) :). Mommy started back to work to help pay for all the medical expenses that go with Autism. That is a later discussion.
April 3 Mommy had her birthday, April 4th - NaNa (Daddy's Mommy) passed away caused by Cancer. Very, Very sad and Hard Days on Daddy and Abbie's Uncles and Aunts.
Abbie started to make progress, she started making more eye contact being more aware of who is in the room, and we started Feeding therapy at Brown. Finally after waiting 9 months we got a slot for Feeding Therapy Session at Vanderbilt. Abbie started making progress with Feeding (one of hardest battles even today).
June, Abbie had a new Nanny Lindsey. Abbie and Us love Lindsey. They do all kinds of stuff, play, go out, go to park and Adventurer Science Center (Abbie loves the science center), Do Brown Home work (YAY). Many Many Activities. Abbie misses her other Nannie Diane but she finished her schooling for her Masters in OT. So she had to do her clinical rotations! But we are so very blessed to have found Lindsey (thanks to Sabrina for her recommendations)
We went on Vacation in September to our Favorite place Virgina Beach - Abbie loved the water again and even the Sand. We spent time with our friends Michelle & Savannah. Abbie started to play a little bit with Savannah and even held her hand while taking our summer pictures together. This was the start of major eye contact, and really being aware of the people around her. It is so amazing to see her come out of her little shell.
October - Daddy got sick! He had a bleed in his lungs. You see Daddy has Cystic Fibrosis, and sometimes very bad infections can cause bleeds in his Lungs. Daddy went into the hospital. Very scary for Mommy and Abbie. The first time Daddy had been away for such a long time. Daddy was in the hospital for nearly 6 weeks. Daddy and Mommy was told by Daddy's Doctors that he needed a new pair Lungs and that if he didn't get new lungs he would have maybe 6-12 months to live. Very hard news for Daddy and Mommy to hear. So Daddy's Doctors started the Lung Transplant Evaluation. Lots and Lots of tests. Daddy missed Thanksgiving so we had Thanksgiving with him. Then Daddy came home and got sick again, and went back into the hospital for another 3 weeks. Daddy missed Christmas at home so we went to Daddy. Mommy didn't want to put up Christmas decorations this year but mommy friends from work came over and helped! So Abbie loved messing with the Christmas Tree, but she had fun opening her presents. There is the overview of 2012!
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